A day in the life of Autism

Friday, July 14, 2006

And fun was had by all....After a lot of work

Well we went to the redneck paradise of Dollywood for our vacation this year and had a Great Time!! I really thought it would be a waste of time but between the rides and nice cabin we had fun. The only hard part was getting Brandon to have a good time. That was a LOT of work. The funniest time was when we were walking into the park and a nice lady took our picture for us, the lady said ya'll have a goodtime in DOL-LY- WO-OD. Yes I am from the south born and raised BUT I don't take an extra syllable to say every word. The funny part of this is Brandon saying to everyone "We are in DOL-LY- WO-OD". It was priceless. I will say that the hardest part was getting him to ride the rides. Once we got him on one he was fine. The wet ones were the hardest though. He fought tooth and nail and then was like "OK Let's go again!!" This was part for the whole vacation. He loved the cabin and wanted to stay their ALL THE TIME!! We only got him to leave by saying if we go back to the cabin you will have to go to bed. It was a choice, made by him you can do what we want to do or you can do the lesser choice. He always made the right choice but we had to give him these several times. These were started by don't want to ride the swings... choice, then OH I had a great time. Then don't want to get on whatever ride....choice, then Oh I had a great time. After 5 hours of this the fun on me and my husbands part was a little strained but the end result was good memories for all. Brandon was not tall enough for the roller coasters but he watched each one. We will be back to ride those, he told me. That may have been the problem all along, who knows... His sisters had fun, we had fun, Brandon had fun.... That's all that matters. oohh, I came home with chicken pox, everything can't be perfect. Brandon keeps looking for the chickens though...

Friday, July 07, 2006

I hate to be right...

Well Brandon did NOT get his meds over the weekend. I put instructions in the bag with the bottles and once again he came home with just about the same amount of meds that he left with. I really don't understand how you can see the benefits he gets from his meds, acknowledge that but not give them?? Consistency is the key with a autistic child. He has enough to deal with without being put back because someone did not give his meds right. It just makes me SOOOOO mad!! Well, we will be gone for a few days ourselves so a lot of one on one time with the family is just what we need. Getting him back in tune with everything and having a goodtime doing it. The hardest thing about being right is you don't win a prize, you don't get your name in lights, I really don't want that, I just want my son to be taken care of. Being right ... I would give that up anyday for just knowing he's OK.

Sunday, July 02, 2006

A day off but not really..

Brandon is my son from a previous marriage so he goes to his dad's for the weekend with his sister every now and then. Not to often since my ex doesn't have the appropriate facilities to manage them nor the time. I don't push the issue as I worry ALOT while they are gone. Will Brandon get his meds??(I have had to call DHS a couple of time to force the issue) Will he properly supervise them.(He has left them with neighbors while he had something to do....Meanwhile one of them gets attacked by a dog and the older one gets bit trying to defend Brandon. I found out when bathing her that night and found huge bruises from the dog bites.) Are they getting fed?? Is Brandon getting enough attention or will he act out when he gets home because of the inattention all weekend from his dad? If they are at the grandparents I don't worry as much but they don't agree with my methods, they think I am just medicating him and should be using dietary means...Whatever. I am trying to make sure that Brandon is able to function as normally as possible and not treated as a freak because he can't eat fruit rollups like all the other kids, he can only eat tofu.. Like I said whatever. If it makes Brandon feel normal and he is able to function in this world just like everyone else I am for it. So like I said while he is at the ex's I am having a day off but I worry, I pray, and I put it in God's hand and keep tabs.