It looks the same, it is the same
I spent tonight looking over my past posts and I am struck how it just goes over and over. Life with a son who has autism is hard. Last week the school said that Brandon baffles them. I agree, he baffles me to. I never know what to expect. Everyday I pray that the phone does not ring at work with Brandon screaming in the background. I pray that he has not hit anyone. That he is safe. That we make it though another day.
Do the other families feel like this?
Can anyone that we know, know what we go through everyday to just make the day a good one not look at us and say you do what??
We start the day the night before by prepping for the next day. What's going to happen.. What to expect... Robert has to wake up Brandon and rough house with him. make sure he is dressed correctly..make sure he brushes his teeth has on his shoes and glasses..then we get down stairs make sure he eats ..takes his medicine.. double check that he took it and did not forget..does he have his coat and backpack?? . drop him off at school because the bus was to loud...then pray he makes it through the day without and incident and along the way he learns something...pick him up at 5:15 ..ask how his day was...I can look at him and know.. if he's waiting for me and looking down it was a bad day...if he is hopping and laughing it was good and he's allowed TV time....go home and start homework while I am cooking dinner...fight with him to do it while I am not standing right beside him...Robert gets home..we eat dinner..finish homework....homework can take up to two hours depending on if he got everything done at school that day...go upstairs wind down and take baths... have a dance party in our bedroom with the ipod and flashlights...Give Brandon his night time meds... lay out his clothes and talk to him about the next day..kiss him and get the best hug ever because he looks you in the eyes and says "I Love You, Mom." and squeezes... then he says "Can I call you when I'm sick?"... I stop..say "yes, Brandon." He has to ask the same question everynight..he has for 4 years, since he learned to talk.
Yes, this is our day. Everyday. Some nights are different..we have boy scouts..gymnastics..tae kwon do but essentially it is the same.
Always the same... except for the days that it's not, then watch out.
Do the other families feel like this?
Can anyone that we know, know what we go through everyday to just make the day a good one not look at us and say you do what??
We start the day the night before by prepping for the next day. What's going to happen.. What to expect... Robert has to wake up Brandon and rough house with him. make sure he is dressed correctly..make sure he brushes his teeth has on his shoes and glasses..then we get down stairs make sure he eats ..takes his medicine.. double check that he took it and did not forget..does he have his coat and backpack?? . drop him off at school because the bus was to loud...then pray he makes it through the day without and incident and along the way he learns something...pick him up at 5:15 ..ask how his day was...I can look at him and know.. if he's waiting for me and looking down it was a bad day...if he is hopping and laughing it was good and he's allowed TV time....go home and start homework while I am cooking dinner...fight with him to do it while I am not standing right beside him...Robert gets home..we eat dinner..finish homework....homework can take up to two hours depending on if he got everything done at school that day...go upstairs wind down and take baths... have a dance party in our bedroom with the ipod and flashlights...Give Brandon his night time meds... lay out his clothes and talk to him about the next day..kiss him and get the best hug ever because he looks you in the eyes and says "I Love You, Mom." and squeezes... then he says "Can I call you when I'm sick?"... I stop..say "yes, Brandon." He has to ask the same question everynight..he has for 4 years, since he learned to talk.
Yes, this is our day. Everyday. Some nights are different..we have boy scouts..gymnastics..tae kwon do but essentially it is the same.
Always the same... except for the days that it's not, then watch out.
posted by beenthere at
9:23 PM
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